A Steroid by any other Name is still a Steroid

I am getting over a nasty respiratory tract infection plus asthma. The doctor I saw over televist wanted to prescribe prednisone, and asked why it says I’m “allergic”. I said that it triggers mania in me. So he prescribed a steroid inhaler, which did give me my breath back. They always say “it is not systemic,” and I always fall for that line. Doctors and their fifty-cent words.

Colorful octopus multitasking by painting, reading magic book, knitting, and stirring potion underwater

Being sick meant I had a few three-to-four hour day night’s of sleep. As my breathing got better, my sleep did not. Pressured speech, doing hundred things at once (including being in the busiest season at work). My therapist noticed, and gave me this assignment.

  1. Sleep 7-10 hours (taking 2 clonazepam nightly until I’m stable).
  2. No caffeine (I had some last Monday, and my coworker said I was talking too fast, so I blamed the caffeine and switched to barley tea)
  3. Low lights
  4. Limit extracurricular activities to 1-2 per day (I have a long list of self-care activities, and she knows I feel compelled to do them all.)
  5. Take breaks during work (I’m working 10+ hours with straight meetings/work/work-meetings. Any time I get even five minutes, I shut my eyes and do a breathing exercise.)
  6. At least 15 minutes of quiet time (no screens/maybe guided meditation)
  7. My husband and I meet weekly to go over things like home, money, “deposits”. Have a brief meeting every night to go check in. Also where I am on the UK mood scale.
  8. Check in with my therapist on my app daily (highest heart rate and why, exercise?, HRV level and notes).

I took today and Monday off to see my best friend and booked a hotel, because I knew I’d be busy now (just at work). Since then hubby and I bought a car and are moving to a new apartment next week. There is a list of major stressors, and I think I’ve ticked most of them. The chosen ones (car/apt) will be great in the long run. I pulled my husband through some stressors these few weeks. I am concerned when I get manic, and I see my husband stress to keep up. The worried/tired look on his face is a good litmus test for how bad it is for me. It helps me to push myself to slow down for his sake. As he get more stressed and crises get higher, I feel more relaxed. My therapist mentioned this is common in people who suffer PTSD, if you have a history of trauma, crises feel normal. When things are mellow, you feel uncomfortable. This is probably why I enjoyed working on the suicide/crisis hotline so much. She said, even though I feel calm, my cortisol is still spiking and this is not a healthy place to stay.

I think the only people benefit fom my hypomania is work. I wear multiple hats with different departments, and I often have many different people reaching out to me at the same time. I have three computers for two “places”. This week, I’ve been in meetings all day for deadlines in three departments coming up (twice in two meetings at once – thanks Google). AI has been a blessing and a curse, I can program/draft memos/agendas, etc., so much faster now, but AI goes as quickly as I do, so I have to force myself to take breaks. I’m learning multiple different systems, and I’m an admin or backup admin to two already.

Today is my day off, and I need to go back to that list again and again. I may play a video game, I’ve been playing cozy games, but I really want to play Subliminal. I’ll give it a try. I will also pick some non-screen extra-curriculars like coloring and packing.

Battery Running Low

Earlier today, I think I had an analogy about my energy being a battery that is depleted by being around people. It is feeling pretty low. Too low to flesh that analogy out. Went to my in-laws to move everything around one more time.

On our way “home”, I started to panic about the move. My sanctuary time is so important to keeping my battery full. When I got home I went for a walk to clear my head.

Sitting here in a warm blanket and half watching the new Matlock. I apologized to my husband, I know he is going through so much, too. I’m reminded of my favorite poet and the need to revisit my lungs.

my brain and
heart divorced

a decade ago

over who was

to blame about
how big of a mess
I have become

eventually,

they couldn’t be
in the same room
with each other

now my head and heart
share custody of me

stay with my brain
during the week

and my heart
gets me on weekends
they never speak to one another

– instead, they give me
the same note to pass
to each other every week

and their notes they
send to one another always
says the same thing:

“This is all your fault’

on Sundays

my heart complains
about how my

head has let me down
in the past

and on Wednesday
my head lists all
of the times my
heart has screwed
things up for me
in the future

they blame each
other for the

state of my life

there’s been a lot
of yelling – and crying

SO,
lately, I’ve been
spending a lot of

time with my gut

who serves as my
unofficial therapist

most nights, sneak out of the
window in my ribcage

and slide down my spine
and collapse on my

gut’s plush leather chair
that’s always open for me

~ and just sit sit sit sit
until the sun comes up

last evening,

my gut asked me

if was having a hard
time being caught
between my heart
and my head

nodded

said didn’t know
if could live with
either of them anymore
“my heart is always sad about

something that happened yesterday

while my head is always worried

about something that may happen tomorrow,
lamented

my gut squeezed my hand

‘just can’t live with

my mistakes of the past

or my anxiety about the future,’
sighed

my gut smiled and said:
‘in that case,

you should

go stay with your

lungs for a while,’

was confused
– the look on my face gave it away

“if you are exhausted about

your heart’s obsession with

the fixed past and your mind’s focus
on the uncertain future

your lungs are the perfect place for you

there is no yesterday in your lungs
there is no tomorrow there either

there is only now

there is only inhale

there is only exhale

there is only this moment

there is only breath
and in that breath

you can rest while your
heart and head work
their relationship out.’

this morning,
while my brain
was busy reading
tea leaves

and while my
heart was staring
at old photographs

packed a little
bag and walked
to the door of
my lungs

before could even knock
she opened the door

with a smile and as

a gust of air embraced me
she said
“what took you so long?’

by John Roedel

Even more beautiful out of his own mouth.

Medication Transition Part IV

After Lamictal gave me rashes, my Pdoc suggested Seroquel. I tried for a few days, but the fatigue was like a perma-hangover. I need to be on top of my game at work, so this is a no go. I also had trouble sleeping. I learned from my Sleep doctor that antipsychotics exacerbate sleep movement disorders. If it’s not one thing it is six others. 😐 He wanted me to switch to Latuda (another antipsychotic). Ugh.

I joined an amazing forum called Bipolar UK https://ecommunity.bipolaruk.org/. I learned so much from the users there. I’m going to try Depakote next. He said it works better for mania, which has always been my biggest issue for the last thirty years. The worst depression/anxiety came from the Geodon trial.

Earlier this month my mother-in-law died, and almost ten of her family members contracted COVID while visiting her. This was my first COVID dx. There is some relief that I don’t have to live in a bubble worrying about getting it. It was unpleasant but manageable. The hardest part was that none of us could be there when she died. Being high risk, I was prescribed Paxlovid, and the nurse told me to stop taking my sleep meds (clonazepam). If I had a nickel every time that happened, I’d have 10 cents, but it SUCKS. It has been 25 days and I am still sleeping 4-5 hours. My sleep doc told me to up my Clonazepam to 2-3 mg. I had one eight hours and last night was five. It gets so frustrating not being able to sleep. I get so down on my self, even though I know it is my brain. In the morning my husband registers worry and pain on his face, and I feel even worse.

We are moving in with his father to help take care of him. When I got my psychology undergrad in the 90s, I remember a list of the worst stressors. It feels like I’m hitting too many at once – death, moving, hypomania, lack of sleep, and the therapist is closing her practice. Luckily, my relationship with my hubby of 25 years last month is as strong as ever.

We bought ourselves laptops for retail therapy. So far, I love it. Gives me a way to write, work on my photos, learn more things (knitting, guitar/cello), meet more people. I’m aware that my social circle has dwindled to just a few people. I’d like to get back to UU church and go to some meetups. I had a mediation group with my mother-in-law, but I need to find a new one.

I’m finally getting to a point where I don’t need to repeat things over and over to keep focus. When I can’t sleep I’ve been noting things I don’t want to forget. It includes fifty items that I dropped into AI, to create a categorized Google Sheet. I also started a Google Sheet of MBA programs. AI has been super helpful, and it is the only thing that feels like it keeps up with a manic brain.

I’m tired and ready to slow down. I hope I sleep all night tomorrow, because we are moving our offices to my in-laws tomorrow.

A little meandery today, but I wanted to jump back on the blog.

Hope for the future.