A Steroid by any other Name is still a Steroid

I am getting over a nasty respiratory tract infection plus asthma. The doctor I saw over televist wanted to prescribe prednisone, and asked why it says I’m “allergic”. I said that it triggers mania in me. So he prescribed a steroid inhaler, which did give me my breath back. They always say “it is not systemic,” and I always fall for that line. Doctors and their fifty-cent words.

Colorful octopus multitasking by painting, reading magic book, knitting, and stirring potion underwater

Being sick meant I had a few three-to-four hour day night’s of sleep. As my breathing got better, my sleep did not. Pressured speech, doing hundred things at once (including being in the busiest season at work). My therapist noticed, and gave me this assignment.

  1. Sleep 7-10 hours (taking 2 clonazepam nightly until I’m stable).
  2. No caffeine (I had some last Monday, and my coworker said I was talking too fast, so I blamed the caffeine and switched to barley tea)
  3. Low lights
  4. Limit extracurricular activities to 1-2 per day (I have a long list of self-care activities, and she knows I feel compelled to do them all.)
  5. Take breaks during work (I’m working 10+ hours with straight meetings/work/work-meetings. Any time I get even five minutes, I shut my eyes and do a breathing exercise.)
  6. At least 15 minutes of quiet time (no screens/maybe guided meditation)
  7. My husband and I meet weekly to go over things like home, money, “deposits”. Have a brief meeting every night to go check in. Also where I am on the UK mood scale.
  8. Check in with my therapist on my app daily (highest heart rate and why, exercise?, HRV level and notes).

I took today and Monday off to see my best friend and booked a hotel, because I knew I’d be busy now (just at work). Since then hubby and I bought a car and are moving to a new apartment next week. There is a list of major stressors, and I think I’ve ticked most of them. The chosen ones (car/apt) will be great in the long run. I pulled my husband through some stressors these few weeks. I am concerned when I get manic, and I see my husband stress to keep up. The worried/tired look on his face is a good litmus test for how bad it is for me. It helps me to push myself to slow down for his sake. As he get more stressed and crises get higher, I feel more relaxed. My therapist mentioned this is common in people who suffer PTSD, if you have a history of trauma, crises feel normal. When things are mellow, you feel uncomfortable. This is probably why I enjoyed working on the suicide/crisis hotline so much. She said, even though I feel calm, my cortisol is still spiking and this is not a healthy place to stay.

I think the only people benefit fom my hypomania is work. I wear multiple hats with different departments, and I often have many different people reaching out to me at the same time. I have three computers for two “places”. This week, I’ve been in meetings all day for deadlines in three departments coming up (twice in two meetings at once – thanks Google). AI has been a blessing and a curse, I can program/draft memos/agendas, etc., so much faster now, but AI goes as quickly as I do, so I have to force myself to take breaks. I’m learning multiple different systems, and I’m an admin or backup admin to two already.

Today is my day off, and I need to go back to that list again and again. I may play a video game, I’ve been playing cozy games, but I really want to play Subliminal. I’ll give it a try. I will also pick some non-screen extra-curriculars like coloring and packing.

To Sleep Perchance to Remain Stable

I did not add another antipsychotic even after my doctor suggested it. I am feeling better now, but my sleep has been somewhat fragmented. Mania or perimenopause or both? I’m going to take 1mg of clonazepam until I have some solid nights’ sleep. I keep waking up at two or three and staying up for an hour. I feel like I have great ideas, so I started emailing them to myself. It is like writing things down when you are drunk…not so great.

I saw two therapists at Talkspace, and due to insurance issues, I got charged full price – ugh. They also weren’t great therapists. I went back to my EAP, and I’m seeing a life coach. I told her that I have a bipolar diagnosis, and I am prepared to switch to a therapist if necessary. I’ve only seen her twice, and I really like her style. She is supportive, gives me homework, and helps me set goals.

My busiest time at work starts next month. I’m also doing month-end work now, which means 10-11 hour days a few times a month. My coach says she will work with me to set boundaries and take care of myself. I have great self-care tools; I just need to remember to use them.

My plan is to read before I go to bed, read if I wake up at night (with non-blue light), and meditate. I have not been meditating in the last few weeks, and I feel so much better when I do. It is getting late, so I will go to bed to get to a more stable bedtime.

Darkness

I’ve been on Depakote since July. I had a very dark October, and with the help of my therapist and a lot of what she called “psychological first aid” things started to trend up. I realized that Octobers are always hard for me, but this was the first without Lithium since I was a teen.

I had a couple weeks that were nearing hypomanic and everything was awesome. Now I’m feeling low/anxious again. My doctor wants to put me on Latuda. I’m too scared to try another antipsychotic, but he says maybe that’s because I’m helpless/hopeless. It’s hard to understand how he knows that after five minutes on a televisit. The other three drugs we tried had bad side effects (one included anxiety sooo much worse than this). I like to think it is partially due to the darkness and SAD. It gets hard when it gets dark at what feels like 2:30pm. I’ve also caught the respiratory crud, and have had it this week during my birthday and today on Christmas.

I contacted the therapist that I really liked, and she said she can’t ethically see me anymore, because she is through work and they can only offer short term therapy. She had “graduated” me in November. Ugh. Getting fired by a therapist is not pleasant. I started with a new therapist on a therapy app last week. I’m hopeful that she will help me crawl out of this hole.

I know part of what I miss is people, because they lit up my world. I’ve been remote since the beginning of the pandemic. I feel like a drain on my husband who also works remotely. I miss taking breaks and chatting with coworkers with out a screen between us. Now that I think about it, that is how I have met new people since the friends I made in school (many, many years ago). I have a few close friends, but we only talk on the phone. I want to get connected with church when I’m feeling better.

Crap, this vent sure is starting to make my doctor sound right. My husband is a light in the storm, but I feel like I’m taking all of his energy. He is ready to do whatever helps, and he just walked in the room singing a song from Paddington 2.

I want to connect with people and go to the pool again. I’m going back to my third(?) rewatch of Ted Lasso.

Lithium Be Gone

This is my first week off of lithium in over 30 years. I regret that I didn’t start with Depakote at the beginning, but I know that I can’t go back. I’m worried about depression, because my psychiatrist says Depakote doesn’t help for the lows.

I went to the beach for a vacation last week, and I felt stress free. I’m pretty sure the current lows are a whiplash from the nice time and going back to work. On the plus side, I have a great therapist again. Maybe it will help if I work on some homework from her.

Meds Update

I’m still taking 1000mg Depakote, but I’ve been on 150mg of Lithium for a couple months. My sleep has been more steady, and I’ve been taking magnesium glycinate. It has helped me chill out in the evening.

I don’t feel manic, but I struggle with the doldrums. I’m not very talkative tonight.

Slaying the Depakote-Fear Dragon

I started taking Depakote 500mg BID on December 1st. The first day I felt like a zombie, I had trouble speaking and concentrating. I was so disheartened. I contacted my Pdoc immediately and asked if I could take both doses at night. Immediately helped. I felt like myself again.

Knowing that my doctor warned of weight gain and hair loss, I started to fret. My brother suggested I start my Moira Rose era. So far, I haven’t lost weight, but I have also been moving a lot. As far as hair care goes, I try not to add supplements to this chemical cocktail I already take, so I started using rosemary oil. At the very least, it smells nice.

My lithium has been reduced from 750 to 450mg. Hu-freaking-zah. My sleep is the main thing I notice. Sleep is sacred, and I’m getting 6-7 hours now, and 8 is my sweet spot. I keep waking at 2 or 3am. I’ve been doing some early am shopping, but I always keep it under 50 bucks and make sure it is “practical” in my sleepy brain. Thank goddess for Amazon’s return policey. I’ve had two or three nights of eight hours over the last few weeks. We moved on Sunday, so I’m hoping that I’m also getting used to the new place.

I’ve been using the Bipolar UK app to track my mood, and I couldn’t suggest it more. My nephew who was just dx started using it, too. He showed me how to look at trends. It made me feel so much better to see that I’m in a pretty safe zone based on my daily records.

“Step One of my Ridiculously Circuitous Plan: Complete!” Bender, Futurama

One More Try

I’ve tried multiple drugs to replace Lithium now that I have Kidney Disease. Geodon, Lamictal, and Seroquel. All disastrous, and I just received Depakote. I need to have a few more days of sleeping all night before I try a new one.

AI is getting pretty good — “woman trying multiple psychotropic medicines to get off of one that caused ckd”.

Battery Running Low

Earlier today, I think I had an analogy about my energy being a battery that is depleted by being around people. It is feeling pretty low. Too low to flesh that analogy out. Went to my in-laws to move everything around one more time.

On our way “home”, I started to panic about the move. My sanctuary time is so important to keeping my battery full. When I got home I went for a walk to clear my head.

Sitting here in a warm blanket and half watching the new Matlock. I apologized to my husband, I know he is going through so much, too. I’m reminded of my favorite poet and the need to revisit my lungs.

my brain and
heart divorced

a decade ago

over who was

to blame about
how big of a mess
I have become

eventually,

they couldn’t be
in the same room
with each other

now my head and heart
share custody of me

stay with my brain
during the week

and my heart
gets me on weekends
they never speak to one another

– instead, they give me
the same note to pass
to each other every week

and their notes they
send to one another always
says the same thing:

“This is all your fault’

on Sundays

my heart complains
about how my

head has let me down
in the past

and on Wednesday
my head lists all
of the times my
heart has screwed
things up for me
in the future

they blame each
other for the

state of my life

there’s been a lot
of yelling – and crying

SO,
lately, I’ve been
spending a lot of

time with my gut

who serves as my
unofficial therapist

most nights, sneak out of the
window in my ribcage

and slide down my spine
and collapse on my

gut’s plush leather chair
that’s always open for me

~ and just sit sit sit sit
until the sun comes up

last evening,

my gut asked me

if was having a hard
time being caught
between my heart
and my head

nodded

said didn’t know
if could live with
either of them anymore
“my heart is always sad about

something that happened yesterday

while my head is always worried

about something that may happen tomorrow,
lamented

my gut squeezed my hand

‘just can’t live with

my mistakes of the past

or my anxiety about the future,’
sighed

my gut smiled and said:
‘in that case,

you should

go stay with your

lungs for a while,’

was confused
– the look on my face gave it away

“if you are exhausted about

your heart’s obsession with

the fixed past and your mind’s focus
on the uncertain future

your lungs are the perfect place for you

there is no yesterday in your lungs
there is no tomorrow there either

there is only now

there is only inhale

there is only exhale

there is only this moment

there is only breath
and in that breath

you can rest while your
heart and head work
their relationship out.’

this morning,
while my brain
was busy reading
tea leaves

and while my
heart was staring
at old photographs

packed a little
bag and walked
to the door of
my lungs

before could even knock
she opened the door

with a smile and as

a gust of air embraced me
she said
“what took you so long?’

by John Roedel

Even more beautiful out of his own mouth.